Thursday, September 30, 2010

Michael J Fox on CNN with Dr Sanjay Gupta Tonight at 8pm

This article is posted in conjunction with an interview tonight at 8pm on CNN with Dr. Sanjay Gupta and Michael J. Fox.
http://pagingdrgupta.blogs.cnn.com/2010/09/30/living-with-parkinson%E2%80%99s/

pagingdrgupta.blogs.cnn.com
Five to 10 percent of the estimated 50,000 Americans living with Parkinson’s disease each year are under the age of 50. It’s called “early onset Parkinson’s." Two people suffering from “early onset Parkinson’s" shared their stories with CNN Radio’s Jim Roope

Sunday, September 26, 2010

NEUROBOXING CLASSES - STARTS MONDAY NOVEMBER 29TH AT NEU-WELLNESS INSTITUTE

                                    NeuroBoxing Program


NeuroBoxing is a non-contact, non-competitive boxing workout that helps improve balance, coordination and flexibility. We incorporate conditioning with boxing and kickboxing techniques designed to provide a total body workout. With a total mind, body, spirit connection, NeuroBoxing helps people with neurological conditions live the best quality of life possible.

My name is Jennifer Parkinson. I am 37 years old and a Registered Nurse. At age 32, I was diagnosed with Parkinson disease, a progressive neurological disease which causes tremor, muscle rigidity, and slowness of movement. I began boxing with my trainer, Dale Jacoby, about 2 years ago. My symptoms have significantly improved and I have decreased my medications as a result.

Dale Jacoby, Instructor for NeuroBoxing, is a 5-time World Kickboxing Champion and 6th Degree Black Belt Master Instructor. He has 35 years experience fighting, teaching and training. He teaches his students to  Finish What They Started" and most of all that "Pain is Temporary but Pride is Forever".
                      

                    Mondays & Fridays at 10:00 am
                                           AT
                                     
                           Neu-Wellness Institute
                   19730 Ventura Blvd, Suite 104
                      Woodland Hills, CA 91364
                                                    
                                    $15/Class                                             
                                                        
                                             Limited Space, please RSVP: 
                                                          
                                     Jennifer Parkinson
                                   Phone: 805-304-8527
                           Email: neuroboxing@yahoo.com           


BOOK NOW - APDA Young Parkinson's Retreat at Sea - Feb 11, 2011 cruise details‏

APDA Young Parkinson's Retreat at Sea - Carnival Paradise - from Friday, February 11, 2011 to Monday, February 14, 2011. This retreat is designed for people who consider themselves to be “young onset”.  The retreat will provide participants an opportunity to connect with others, receive updates on the latest research and emerging therapies, and experience wellness strategies such as yoga, tai chi, exercise, music therapy, meditation and more – all in a fun and relaxing, social environment. Younger children will benefit from age appropriate sessions to develop cognitive and behavioral skills to help them cope with the reality of PD in their family.  A teens-only session will allow older kids a chance to “chill” and explore their own questions. In addition, Carnival is renowned for its kids and teen activities for ages 2-11, 12-14 and 15-17 each with their own space and cruise program.

Deposit and final payment: a deposit of $ 100 per person is due now to guarantee the rate and book a cabin. Final payment is due on December 14, 2010.

There are several forms that you will need. Please email me at jenyopd@yahoo.com if you are interested and I will forward them to you.

If you have questions regarding the retreat, please call Linda at 877-223-3277 or 310-423-3277 or Viviane at 866-499-2732 or 818-885-8623. We look forward to seeing you aboard the Carnival Paradise!


PD 101 Sat October 2nd 1-3pm Northridge Hospital


PD 101 class at Northridge Hospital
for newly diagnosed patients with Parkinson’s disease

The American Parkinson Disease Association Regional Information & Referral Center at the Center for Aging Research & Education is conducting its annual PD 101 class in the educational auditorium at Northridge Hospital Medical Center on Saturday, October 2 from 1 p.m. to 3 p.m. with Dr. Michael Marvi, Movement Disorders Specialist, speaking. The class is for newly diagnosed patients or anyone who needs a refresher. Family members and caregivers are invited to attend as well. There will be a Q & A session with Dr. Marvi after his talk so be prepared to ask questions and participate in an uplifting and informative seminar.

Parkinson’s disease is a chronic progressive neurological disorder usually associated with tremor, stiffness or rigidity, slowness of movement and postural instability. Although there is no cure (yet), medication management, exercise therapies, and surgeries can help with the symptoms. There are approximately 1.5 million people in the U.S. with Parkinson's disease and there are an estimated 60,000 new diagnosis per year.
The APDA is a nonprofit organization with a dual mission: “To ease the burden and to find a cure.” In addition to funding research to find a cure, the APDA has a network of 60 local Information & Referral Centers where a coordinator oversees support groups, information meetings and educational seminars to help patients and their families better understand the disease.

The PD 101 class is held in the educational auditorium (main entrance) of Northridge Hospital Medical Center at
18300 Roscoe Boulevard, Northridge, CA 91328
. The class is free but registration is required by calling 818-885-8623 or 866-499-2732 (outside 818 area code). You can also send an e-mail to valleyapda@yahoo.com to register. A complimentary luncheon is served from 12 noon to 1 p.m. Parking (entrance on Etiwanda) is validated for $1 or free with a disabled placard.

PAN: Parkinson’s Disease Work-Related Disability Assessment

Many people with Parkinson disease, at some point in their diagnosis, will apply for disability benefits through the Social Security Administration. This is such a difficult process especially when dealing with a progressive neurological disorder.

The link below is from the Parkinson's Action Network (PAN). PAN created this form as a supplement to the patient's medical record. It is not a Social Security Administration form. Please follow the link below to access the form. This may be a very useful tool for you and your doctor when you apply for Social Security Disability benefits.  
 

MyParkinsonBlog

My name is Jennifer Parkinson. I am 37 years old, an RN and a divorced mom of 2 kids, ages 6 and 9. I was diagnosed with young onset parkinson disease 5 years ago at age 32. When I was  diagnosed, I had a tremor in my right hand, difficulty walking and dragging my right leg. I was extremely fatigued and my kids were 1 and 4. It was very challenging.  About 2 years ago, I started boxing and kickboxing, and I noticed over time my symptoms began to improve and I was able to reduce my medications.

I am starting this blog as a resource guide for those of us living with Parkinson disease in the San Fernando Valley region and surrounding areas. I would like this to be a one stop guide for all PD events and information to help you get access to the resources you need.

If you have a Parkinson related event or link that you would like to add to this blog, just email me at jenyopd@yahoo.com